It's tough to write an update, because essentially, things haven't changed. Our just-in-case overnight bags have been packed for a week. Samuel is in a constant state of "hanging on". Every day with him is a celebration! He has defied the odds to even be where he is today - here with us, making marginal improvements. Hooray! But, medically, the odds are still very much against him. Samuel still has a huge battle in front of him. To sum it up, when we ask the doctors what they think, they say that if there were no chance for Samuel, we wouldn't be trying all of the things we are trying. As you can imagine, that's not easy to hear. So, if we seem a bit scattered, or even crazy, please forgive us. Most moments we can't decide whether to jump for joy about another hour with our littlest guy, or cry because we're scared about what the next day might hold.
This is where Mohawk Therapy comes in... it's really just a fancy word for realizing how great your family is :) That each moment is precious! For example, we came home from another day at the hospital, and discovered our little girl is growing a mohawk! Made me realize that there is nothing better than the every day moments that happen with your family. Check it out...
Our little girl is growing a mohawk! Not sure why, but it seems that her hair is only growing in the middle :) I LOVE it! She is so stinkin' cute!
DB can always make me smile... just one example was a few weeks ago... nothing better than a homemade diaper sign :)