Thursday, December 31, 2009

George's Big Day

George is a new boy! His cheeks are flushed, his smile is twice as big, and he has three times the energy. On December 30th George had a heart procedure, and he did so well! Hard to believe, but after only two days (one night) in the hospital, we are home and happy!

George's PDA (Patent Ductus Arteriosus), a ductus in your heart that is open in the womb, but generally closes when you take your first breath, popped open when he came home from the hospital. When your PDA stays open, blood that should go to the body is instead recirculated through the lungs. (Olivia's PDA was open when she was tiny, but closed with medicine, and Samuel's PDA was also open and had to be surgically ligated back when he was 2 pounds.) In addition, George also had an ASD (Atrial Septal Defect), or in other words, a hole between the two upper chambers of his heart.

He has been seeing a cardiologist since he came home from the NICU... it's great because the same hospital where they were all in the NICU has outreach clinics here, so we get to see the same cardiologists, but instead of a 90 minute drive, it's only a 5 minute drive! At our last visit the determination was made that it was time to get the PDA closed... George's pulmonary pressures were rising, and there is a point where if it's not closed it can cause more traumatic damage to the heart down the road. Also, with an open PDA, you have to work harder to do everything! George's work of breathing, eating, playing, you name it, was more difficult because he had to work so hard to overcome the direction of blood flow caused by the open PDA. The great news was that while Samuel's had to be ligated, which is much more invasive, because George is older this can all be done laparoscopically in the cath lab! It's crazy - they insert the cath in the femoral line and go from there... even though they are working on his heart, the only scars are two dots.

We checked in at 6am on December 30th - which is especially not fun when the hospital is so far away. But, George didn't seem to realize that it was so early :)

Good Morning!

Hey... where are we?!

Who cares! I get mom and dad to myself!

Check out my popeye impersonation ;)

Love you sweet boy!

Love you too...

It was strange to be back at the hospital with George. I think it actually sank in the night before, but being there made it real. We were scared. The great part is that we have trust in the hospital - we feel like Samuel has been in such great hands, and the hands that were about to work on George are part of the same Children's Hospital team. There is a sense of relief... but when they take your baby from you, it's still terrifying.

They gave us a pager and periodically sent updates, which was great... especially because it was SEVEN HOURS after we kissed him good luck that he was back in the unit and we could come see him. Tears! And, the good news... we originally went in only to have the PDA repaired, but the doctor was also able to repair the ASD... yea!!

Our adventure...

Initial EKG... excuse me, can we get some more wires over here...

The cutest hospital gown that you ever did see :)

Hey! I remember these things - I love my pulse ox :)

Seven hours later, after the procedure...

What happened? Where am I?

Check out this cool new thing...
(It's actually the protective covering for the iv, which was not fun when he tried to rub his eyes, and a pulse ox on his finger, which was hysterical to watch at night... he was fascinated with it and waved it around in front of his face every time he woke up.)

... and these! Ummm... not sure that's what those are for, George.

I feel GREAT!!!

During George's procedure (did I mention it was seven hours? just checking... ), we were able to spend some time upstairs with Samuel :) He even made a Get Well card for George. (Have I mentioned the NICU team is incredible?!) I also snuck in to see him early in the morning while George was snoozing. It was "funny" to have one baby on the 7th floor and the other on the 8th :) Not sure it's actually funny, but I don't think they have a word for whatever it is...

George is feeling amazing! The seven hours was totally worth it :) Can't thank the team enough for taking the time to fix both the ductus and the hole! Six months of aspirin, a few follow-up appointments, and George will be good to go... no more procedures necessary :) Another good day - someone has been watching over us!

Olivia got to spend the two days being spoiled by her Omi :) Not to shabby! Thank you Omi!

Thursday, December 24, 2009

Merry Christmas Eve!

Merry Christmas from the Byrne Family!

Nothing better then being together, even if only for a few minutes :) (Thank you Kathy!)

*No worries, Samuel does not have more tubes, we took this picture before his surgery.*

Sunday, December 20, 2009

Miss Personality

One of the most incredible things about having triplets, besides realizing you actually have triplets of course, has to be getting to watch your children grow up at the exact same time. Even though they are exactly the same age, they are SO different!

Things each of them can do that the other two can't yet... Samuel blows kisses (even after enduring more than most people ever have to imagine), George can pick up a cheerio (and anything else he wants to - my fine motor boy), and Olivia is crawling (mostly backwards, but we'll take it). Each of them has their own personality, even at the age of only 10+ months!

A little about Olivia's personality... besides the sugar-sweet-beauty that she is :)

Haaaaayyyyy! Girlfriend loves to smile... and loves to GET smiles even more!

This is what happens when you turn your back - she goes for the stack of bibs and George goes for the hard floor. Hello! There's a reason all of the toys are in the middle of the blankets! Oh well. I'm convinced she is the instigator :)

Who, me?!

Olivia is also very focused. Not sure what I like best about this photo... the teething drool on her dress, the teething clamp she's got on that toy (and the cheeks that come with it), or just that her mohawk is awesome!

Not sure what this says about her... but she is such a cutie!

Back to loving to get smiles... mom, if you think this is funny, so do I!

And the crawling photos...

From stretching... (her reach is at least twice as far as the average baby... I'm surprised she felt the need to learn to crawl!)

... to moving! I think she's just as surprised as we were :)

A Pro :)

Quick update - Samuel is still doing really well! He's had a few so-so days - we think he's had a bit of a cold - but seems to be bouncing back. Love it, he still manages to sneak out a few smiles and kisses even when he's not feeling his best. Also the g-tube has been a bit of a pain... first it fell out (not happy to learn that can happen), and now it's just still a little oozy. But, it seems to be working, Samuel is getting all of his nutrition through it... yea! No more iv's!

Tuesday, December 15, 2009

The Tickle Monster

George tends to be our serious guy... but he LOVES to be tickled :) His feet, his armpits, his neck - you name it. He can't help but laugh out loud - showing all EIGHT of his perfect little teeth!

Other things George loves...

Being cute, of course! But this one is actually about sitting up :) Too funny, he probably loves that toy cow more than anything... babies like the strangest stuff.

Eating finger foods... I am seriously amazed at his ability to pick up a puff.

Playing with toys...

... on his back! George still isn't a big fan of his belly, but the boy can probably bench press three times his own weight :)

He still finds joy in the small stuff :) And in finding his way to the edge of the carpet! He may not like his belly, but George can roll anywhere he needs to go.

Back to being cute again :)

He absolutely loves his bumbo tray! "Bam, bam" have become his favorite words, which also explains finding his way to the edge of the carpet... nothing better than banging on the hard floor.

But George does not like it when his sister steals his toys - ha ha! We're not too worried, he has become quite good at stealing hers too.

Friday, December 11, 2009


Samuel has beautiful cheeks! I know, because I can finally see them! No tape, no tubes, just sweet little cheeks :)

The surgery went so well! And even better - the first 24 hours after the surgery were smooth sailing. Samuel's nurse was joking with me today that she doesn't think he realizes he even had surgery :) He has been smiling and playing just like any other day. Go Samuel!

For the first 10+ months of his life, Samuel has had breathing or feeding tubes in his nose and tape on his face...

Morning Dad! DB and I got to the hospital bright and early... what an incredible thing we saw... our beautiful boy with no tape and no tubes. Just a sweet smiling face - ready to play :)

They took out the tubes in preparation for the surgery, no eating for Samuel. He didn't seem too upset, for the most part smiling and laughing up a storm!

He just takes my breath away sometimes.

DB and I stayed surprisingly calm... until they wheeled him away. Right after this photo a surge of emotions came out of nowhere, followed closely by the knot in your throat and the explosion of tears. I'm not sure there's ever any way to prepare yourself to watch your child go into surgery - it's overwhelming. But, his nurse gave us updates throughout the procedure and all were good which put us at ease :)

Then we saw our little guy... I've said it before, there aren't words to explain the feeling.

Everything went as we hoped! The bronchoscopy looked good - a little collapse to follow up on when we get another scope in about six months - but nothing to be concerned about. In fact, they had huge praise for the NICU team because his airway looked so great! Then came the g-tube and nissen, which they were able to do laparoscopically! Only four small holes, all covered by the band aids. You can even see the tube sticking out of his belly :) For those with tough skin, I asked about the stitch that I thought was holding the disk DOWN onto his belly... it's not, it's holding his stomach UP while the procedure heals! Agh!

He was groggy after the surgery, as you can probably see in the photo :), but never inconsolable. What a brave, strong little man. Today Samuel is doing so well! His oxygen requirements and vent settings are already back to normal! His CO2 numbers are looking great and we've started the trache collar trials for short periods of time! And, they have even started feeding him through the g-tube and he seems to be tolerating very well. Incredible.

When we got to work today, there was a surprise :) (BA is the school where we work.) One word... wow. What an incredible place, with incredible people.

Wednesday, December 9, 2009

Nissen Fundoplication or Bust!

Yes, Samuel is ready! He was approved for the surgery a few weeks ago... and our day is here! At 7am on Thursday Samuel will head to the OR to get his g-tube and his nissen... yea! (I suppose I could have titled this "g-tube or bust", but fundoplication is such a fun word!)

Crazy that we're excited about surgery. Don't get me wrong, I'm still a mom and therefore worried sick and a little panicked... but this is one of our last big hurdles before bringing Samuel home. We are staying focused on the big picture - the ultimate goal - and that is HOME!

The surgery could take up to 3 hours... unfortunately they won't really know until it begins. They will try to do it laparoscopically, if that works it will be relatively quick, if not then it will take a bit longer. It's really interesting, they can't determine whether or not they can do it laparoscopically until they get a good look because every stomach is different. Samuel will also get a bronchoscopy - a look at his airway - while he's under anesthesia. They don't anticipate any issues with his airway - it's always looked good before - but it's a routine thing they do with babies on traches. He'll get the bronchoscopy once per year as long as he's on the trache... if all goes well, this one could count as his discharge bronch! WOW! (We're still shooting for some time in January to come home - but just to hear the word discharge kind of takes my breath away :) )

Here we go!

Samuel doesn't look very worried... but then again, neither do I in this picture! ha ha!

Nope - definitely not worried :)

George and Olivia did their homework on the upcoming surgery... The Playful Fairy is not the book you might think it is :)

**Just a quick recap :) The g-tube is the feeding tube - Samuel will have this until he learns to eat with his mouth. The nissen is a procedure in which they "wrap" the stomach in order to prevent Samuel from refluxing and possibly aspirating... this is the bigger deal. They have to use CO2 for the procedure, which is what Samuel was having a tough time getting rid of, but now they think he is strong enough! His CO2 will be measured closely after the procedure.**