We also continue to ween his meds, the morphine and versed... he is getting close to coming off of them. This would be excellent for a couple reasons... first, it's just great to not be on meds! Second, that would mean his pic line could come out. It's the thing stuck to the side of his head in all the photos, and while it's not a bad thing, anytime there is a line into the body it increases your risk of infection.
Next steps - this week they will continue to run tests to help with the decision of the best kind of more permanent feeding tube. Not permanent meaning forever... permanent meaning the one he will come home with. Currently his feeding tubes are in his nose, but his new one will require surgery and be inserted through his stomach. There are a few options - I'll spare you and just let you know what we decide to do :) Bottom line, Samuel can't eat with his mouth yet. I know, crazy that you have to learn how to eat - but it makes sense! He's never had to, so he doesn't know how. Let the fun begin :)
I'm getting better every day at sitting and holding up my head! OT and PT work with me almost every day... now that I'm off the JET, we even get out of the bed and work out on a big bouncy ball and a floor mat.
Even though I have lots of toys, what I really like to play with are my tubes :) Don't they look fun!
Time to try bananas! YEA!Checkin' them out...
A little taste... hmmm...
Fun with bananas!
Yum! Banana fingers!